Waiting...

Today Lincoln will get a head sono and an echo. His blood results in addition to the results of these two tests will tell us if/when Lincoln's surgery will be taking place.  Sitting around and waiting to hear is difficult.

Last night while lying in bed, I started to think of my little guy being moved to a different hospital.  One where we don't know ANYONE.  Here at SBUH, we know doctors, nurses, security guards, everyone, it seems.  Whether we're off to Cohen's, Mt. Sinai, NYU, or Columbia, we don't know anyone.  No one has an extra vested interest in our son.  I know he will still get incredible care.  But when your doctors and nurses know they'll be seeing you for months or even that you live in their neighborhood, I think there is an extra care there.  And I picture him being moved into an ambulance.  And heading into a new hospital.  And having surgery!  Surgery.  He's 10 days old.  He's one pound.  I'm having trouble with this.  I know it's what is best, so we're obviously going for it.  But yikes.

I came into the hospital this morning with Brian, our across the street neighbor.  Brian and Sue have been so good to us.  Until I can drive, Brian has been taking me to the hospital since he works here anyway.  And when I arrived, Kelly had made two more blankets for Lincoln.  She had made one a year ago for another friend - a boy blankie and a girl blankie - the friends needed a girl blankie, so the boy one had been living here awhile.  It has Batman comic sayings on it like "Pow! Super! Wow!"  We get compliments on it all the time.  Now, Kelly had found Superman material and animals dressed as superheroes and made more blankets for Lincoln. SO CUTE!

Kelly went to suction him, he builds up mucus and saliva from having a tube down his throat.  As she did, his jet vent began alarming.  She listened to his heart/lungs, and she couldn't hear the puffs that the jet gives him.  She asked another nurse to call respiratory, and within 30 seconds, there were 6 people in the room solving his issue.  Luckily, his heart rate was fine and they upped his oxygen to 100 as a precaution.  Within two minutes, everything was calm again and working as it should.  Because his numbers were fine, I didn't panic too much, and it was incredible to watch this team work together to very quickly resolve the issue.

Will post more after rounds when I know more what the track for treatment is.

*Okay, Dr. Eche says if the PDA seems to be flowing with restriction into his lungs, we will wait and give him more time.  If it is wide open (unrestricted), ligation it is.  The echo was just completed.  We wait now for the results of that to come through.

Also weight is down today - 680 to 665g.